Friday, March 22, 2013

Bath Time

Bath Time



Nadia, 7 months old, during bath time.


When Nadia first came home she was still ventilator dependent. We would do all of her care on the floor to make sure there was nothing in our way.This is a infant tub you can buy at most large stores, like WalMart. It worked perfect for us until Nadia was able to sit up on her own.

We only filled the tub about 2 inches deep to make sure she could not slide under. Johnsons Baby shampoo and Dove bar soap worked great for Nadia. Of course we would have everything in place for getting dressed, gauze changes, and emergency trach changes as needed. Most of the time it was a 20 minute process and she would fall asleep during the last 5 minutes.

Nadia has never been afraid of water. As soon as she could sit up we switched to giving her baths in a Bumbo in the tub. Again the water stayed below a few inches and we never left her side as long as there was water around her. Although Nadia is big enough now to sit in the tub, I continue to keep her in Bumbo unless we are washing her bottom because she has no idea that the water is fatal.

Tuesday, March 19, 2013

Introduction to the Blog


Introduction to the Blog

Nadia
24 Week Premie
Weight: 1 lb 12 oz
Length: 12.75 inches



This is my daughter, Nadia, 1 month after she became trached. She is now pushing two years old. The tracheostomy was the largest surgery my daughter has had to endure so far. She also has a G-tube. Her story is very long and full of many triumphs and sorrows. Someday I hope to write it all down in a book. 

I want to focus this blog on specific moments throughout our journey that may be comforting to other parents with trach babies. I also have some helpful tips that have helped my family during difficult stages of our child's development. 

If you have specific questions or topics you would like to discuss please comment or email me. I am not an expert by any means, but I have had lots of experience. There were many times that I would have liked some advice or at least someone to tell me I am not alone. I hope you can find this blog to be of some help.